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Sunday
12Oct2008

With Cancer, There Is Always Hope

Breast cancer survivor Julie K. Silver, MD, celebrates five years of survivorship with her new book for the American Cancer Society, What Helped Get Me Through: Cancer Survivors Share Wisdom and Hope (October 2008). An award-winning author of over a dozen books, including After Cancer Treatment: Heal Faster, Better, Stronger (Johns Hopkins Press), Dr. Silver received the American Cancer Society’s prestigious Lane Adams Quality of Life award in 2006 for her dedication to making survivorship a distinct phase of cancer care. She is an assistant professor at Harvard Medical School in the Department of Physical Medicine and Rehabilitation, and is on the medical staff at Dana-Farber Cancer Institute in Boston, Massachusetts.

Julie Silver--

A couple of years ago, I got an email from someone who asked me what she could do to help her sister who had just been diagnosed with breast cancer. I’m both a breast cancer survivor and a physician, so I had a number of suggestions. However, after I sent off my response I wondered what other survivors would have told her. I decided to ask them. In fact, I surveyed several hundred survivors about what helped them the most and wrote about it in my new book published by the American Cancer Society, What Helped Get Me Through: Cancer Survivors Share Wisdom and Hope.

If you or someone you know has cancer, there are thousands of suggestions in this book about what will help. But if you want to help someone right now—if you want to send them a message of hope and buoy their spirits--send them the link to this blog. Here is a tiny sampling from the book of the many wonderful things that cancer survivors wanted others to know about what really helped get them through:

“There is always hope, and that hope is sometimes changing. It means something different for each person in any given situation. When one doctor tells you there is nothing more that can be done, he is merely saying that he has exhausted his expertise and that the next oncologist may have more up his sleeve. Hope may come in the second, third, or fourth opinion, or totally evolve into a different form.”

Suzanne, wife and mother

Diagnosis of colorectal cancer at age 31 in 1998 in Aledo, Texas

“Our friends and family did not ask what they could do to help us. They simply did things, knowing full well we would not ask for anything. They brought meals, picked up our children for events and outings, and many other small actions. It's a good thing they were thinking for us; we sure weren't. We were too focused on the prize of recovery.” Mike, management professional

Diagnosis of rectal cancer at age 37 in 2006 in Rochester, New York

“What I desired most, for which I found it hard to ask, was physical contact with people. Just the mere contact of someone touching my arm, shaking a hand, giving me a hug, I found to be very comforting. And occasionally, someone to cry with.”

Bill, administrator

Diagnosis of prostate cancer at age 62 in 2007 in Jefferson, Wisconsin

“When people found out I had cancer, most assumed it was breast cancer. Not many people, including myself, had heard of pancreatic cancer. When they had, they assumed men were the only ones to get it. I started a beaded necklace. This necklace has a bead for every positive event I have made it to: birthdays, holidays, anniversaries. I even celebrated the one-year anniversary of my surgery as another birthday.”

Cathy, retail district manager

Diagnosis of pancreatic cancer at age 45 in 2007 in Columbus, Ohio.

“My husband showed me just what true love means. He was with me for every doctor's appointment and every chemotherapy treatment. He became my sole motivation for each day. I lived to see his smiling face and to hear his gentle kind words of encouragement after long nights of nausea and pain…His greatest help to me was his daily hug in the morning with this statement: “Hello, Beautiful. Thank you for fighting so hard so that we can all be together again today!”

Dorothy, receptionist

Diagnosis of breast cancer at age 44 in 2005 in Chesapeake, Virginia

“I could have sat around and felt sorry for myself because my belly looks like a road map, and now I’m a little lopsided because of the surgical procedures. But instead, I got my belly button pierced at the age of forty-two. Why not? I don’t have any feeling in my belly. My hubby thought it was sexy, and my kids thought it was cool. My mother thought I had lost it.”

Kimatha, medical laboratory technician

Diagnosis of kidney cancer at age 42 in 2001 in Edinburgh, Indiana

“Words cannot describe how I feel. When I first received my cancer diagnosis, it seemed that my world would become a much different place. Now I am beginning to feel like my old self again.

John, retired

Diagnosis of esophageal cancer at age 76 in 2006 in Jamestown, North Carolina

“I'm Hope, Grace, and Mercy walking! I'm literally flying without wings, one day at a time.”

Tracey, radiation oncology information analyst

Diagnosis of breast cancer at age 37 in 2002 in Villa Park, Illinois.


Related:

Book Review: What Helped Get Me Through

Interview: With Julie K. Silver, Breast Cancer Survivor

Blog by Julie Silver: Drinking Alcohol Promotes Cancer

Thursday
09Oct2008

To Drink or Not to Drink?

Dubbed “An Apostle for Fitness” in her profile in the Wall Street Journal, Carole has been a featured guest on more than sixty radio and television shows, including NBC’s Today show, CBS’s Early Show, MSNBC’s Countdown, and CNN News. Carole has been featured in magazines such as American Fitness, Diet & Exercise Magazine, and Today’s Health & Wellness, as well as in newspapers such as the Honolulu Star-Bulletin, Tampa Tribune, Sacramento Bee, Baltimore Sun and the Los Angeles Times. Carole’s book, From Fat to Fit, was named a finalist in the health and fitness category of the National Best Books 2007 Awards, sponsored by USA Book News.

Besides teaching and consulting, Carole has produced a weekly community television show, The Tipping Point and a reality show, Go Fat to Fit.

Carole Carson--

To Drink or Not to Drink?

That is the question—at least for those of us trying to lose weight. Should we indulge ourselves and then suffer the slings and arrows of outrageous guilt for consuming empty calories? Or should we abstain?

Last week, my girlfriend Deborah Wagner, a registered nurse, and I had an animated debate on this subject over a wineless lunch. Both of us work to maintain our weight between 128 and 132 pounds. Given our commitment, lunches inevitably begin with a self-assessment on how we’re doing, followed by the latest insights.

When the topic of wine came up, Deborah argued on behalf of the daily sip. As head of our community’s wellness program, Deborah is well informed, whereas my contrary point of view was strictly personal. Although my mind was made up, I was willing to listen.

Deborah asserted that her nightly glass of red wine is medically beneficial. She cited research claiming that a daily glass of red wine improves heart health, helps prevent tumors from growing and improves nerve function. Preventing or delaying heart disease, cancer and Alzheimer’s should be reason enough, Deborah said, to enjoy a glass of wine. However, the immediate benefit is the relaxing effect of wine. The nightly ritual makes the transition from work to home seamless.

Best of all, Deborah said, a glass of wine helps individuals maintain their weight. She based her assertion on research stating that people who consume a single drink a few times each week have a lower risk of obesity than teetotalers or heavy drinkers have. I could understand the connection between heavy drinking and surplus pounds, but I was surprised that a moderate amount of alcohol helped individuals stay trim.

My argument against indulging was not scientifically based but was nonetheless compelling to me. I seem incapable of drinking only one glass of red wine. If one glass tastes good, then the second glass tastes even better. I’ve also noticed that if I drink a glass of red wine with dinner, I crave sugar later in the evening. While the wine doesn’t cost too many calories, the sugared dessert I can no longer resist certainly does. In addition to consuming surplus calories, I feel less rested upon rising the following day. Throughout the day, my energy level is lower than usual even as my appetite is ratcheted up.

I’m 15 years older than Deborah, so our age difference might explain the different physiological reaction I reported. Or maybe I just have different body chemistry.

Had I been more prepared, I could have buttressed my antiwine argument by citing the dangers associated with drunkorexia, the latest eating disorder. This unofficial term describes individuals (mainly women) who starve themselves all day so they can indulge in alcohol later without feeling guilty about consuming too many calories. This abuse of alcohol leads to malnutrition, organ damage and weak bones. Treatment is complicated because the disorder is frequently part of a larger complex of dysfunctional behaviors, such as bulimia and anorexia.

Debbie and I ended our lunch without resolving our differing opinions on the value of a daily glass of red wine—we agreed to disagree. Like the good friends that we are, though, we had no problem agreeing on our next lunch date.

What’s your perspective?

Related--

Alcohol Promotes Cancer

Cost Effective Therapies For Alcohol Dependency

Can You Get Control of Your Drinking?
Wednesday
08Oct2008

Breast Development, Girls, and Their Fears

by Kelly Jad'on

Book Review: Taking Care of Your “Girls”: A Breast Health Guide for Girls, Teens, and In-Betweens (Three Rivers Press, 2008) by Marisa C. Weiss, M.D. and Isabel Friedman

Marisa Weiss and Isabel Friedman call themselves a breast-doctor mom and teen daughter duo. Dr. Weiss is also the co-author of Living Beyond Breast Cancer, and 7 Minutes!: How to Get the Most from Your Doctor Visit. She is the founder of Living Beyond Breast Cancer, a member of the American Society of Clinical Oncology, has served on the National Cancer Institute Director’s Consumer Liaison Group (2000-2007), and is the founder of the nonprofit Breastcancer.org.

Taking Care of Your “Girls” is in part based on a survey of over 3,000 girls from both public and private schools, grades 6 through 12, and their mothers. Divided into 2 sections, the book includes illustrations, identification of breast parts, answers to tough questions (ex. Why do some boys get breasts?), and provides insight into the minds of teenagers through feedback from girls surveyed.

Taking Care of Your “Girls” covers:

  • Breast development from before birth and into puberty (over the course of 10 years) addressing the effects of genes, hormones, nutrition on growth.
  • Self examinations: when to begin, how, what to look for. Also noted here are the several types of tests physicians conduct on breasts for evaluation (really great reading, even for adults).
  • Stretch marks, acne, rashes, chafing, birthmarks, yeast infections
  • What’s up with nipples? Hair, bumps, inverted nipples.
  • Normal changes—this is an important chapter regarding lumps, cysts, pain, and thick areas, and is especially important for the growing girl to read.
  • Bras: Did you know that this idea began in Greece 6500 years ago!? Learn how to fit them, what kind to purchase, and know the need for wearing one.
  • Surgical breast augmentation—explained but NOT condoned.
  • Fears of breast cancer are faced and addressed: only 1 in 10 breast cancer diagnoses is a result of genes, it is more common in men than in women, older women are at higher risk, testing is available for those with gene abnormalities.
  • Lesser risk factors are pointed out regarding smoking, lack of exercise, alcohol consumption, diet, hormone therapy, lack of breastfeeding, late pregnancy, etc..

The authors also explain how breast cancer is discovered and treated.

Did you know that about 90% of moms would like to discuss breast health with their daughters, but only 30% have done so? And did you also know that more than 20% of girls think that breast cancer could be caused by infection, tanning, drug use, stress, breast injury, or a bruise? None of these is actually a risk factor. Dr. Weiss and Ms. Friedman write, “Few girls know how to keep their breasts healthy.”

Taking Care of Your “Girls” is more than a book about girls, breast development, and health. It is a tool which mothers can use with their daughters, to pass on knowledge and the gift of womanhood from one generation to the next.

5 Stars

Related Book Reviews--

What Helped Get Me Through by Julie K. Silver, MD

The Mind-Beauty Connection by Amy Weschler, MD

The Migraine Brain by Carolyn Bernstein, MD and Elaine McArdle

Monday
06Oct2008

What Helped Get Me Through My Cancer

by Kelly Jad'on

A FirstLook Feature

Book Review: What Helped Get Me Through (American Cancer Society, 2008) by Julie K. Silver, M.D.

Edited by the award winning author, Julie K. Silver, herself a breast cancer survivor, the objective of What Helped Get Me Through is to provide stories, memories, and personal histories in the form of wisdom and hope by cancer survivors to others living with cancer. Dr. Silver surveyed hundreds of cancer survivors from around the world and interviewed medical experts and cancer leaders during her research for What Helped Me Get Through.

What Helped Get Me Through offers guidance, emotional support, and advice to those just diagnosed with cancer and those undergoing treatment. Cancer survivors have been in the same situation, and speak their own words about survival, pointing out the small details to the major discussions of the emotional, physical, and spiritual aspects of having the disease.

What Helped Me Get Through from cover to cover:

  • How to manage fear, uncertainty, and speak with your young children. (Dr. Silver had to do this herself.)
  • How to explore and decide upon treatment options.
  • How to take care of yourself, spiritually, physically, and emotionally.
  • How to interact with your family and friends, allowing them to make a difference.
  • What would have helped, but was too difficult to ask for.
  • What could have helped at the time of diagnosis.

Dr. Silver also has included short lists which are invaluable:

  • 5 Things You Should tell Your Partner Who Has Cancer
  • 5 Things To Tell Your Children About Your Cancer
  • 5 Things For a Friend To Do
  • 5 Things Your Oncologist Should Tell You
  • 10 Tips to Help Children and Families
A personal sample: "I was my own worst enemy, and I found myself living on the computer, looking for the worst news possible.  I cured that by going to work...it really helped the depression and getting back into a normal life.--Kathie, nurse and social worker, diagnosed with kidney cancer at age 53 in 2005 in Kingston, New York."

There are many survivors who participated in What Helped Get Me Through, including famous names, that are out on the front lines supporting cancer research today. You’ll recognize Lance Armstrong, Carly Simon, Scott Hamilton, Sharon Osbourne, Susan Vreeland, Elyse Caplan, retired Senator Edward W. Brooke, Lynn Eib, Hester Hill Schnipper, among many many others. Cancer knows no limits of age, race, gender, nor economic position. We are all affected, as What Helped Get Me Through testifies to.

On a personal note, I walked into the emergency room to hear my own father’s diagnosis of pancreatic cancer. We needed this book then. What Helped Me Get Through will encourage many families through diagnosis and treatment, offering hope. Sometimes those days are dark, but there is always hope.

BackStory Byte: Julie K. Silver, M.D. is celebrating her fifth year of breast cancer survivorship.  She is also the author of  more than a dozen books, including: After Cancer Treatment: Heal Faster, Better, Stronger (Johns Hopkins Press), chosen by Library Journal as a top twenty health book (2006) Life After Stroke (Johns Hopkins Press),and Super Healing (Rodale).  Dr. Silver has received the American Cancer Society's prestigious Lane Adams Quality of Life award  (2006) because she of her dedication to cancer care survivorship.  Dr. Silver is an assistant professor at Harvard Medical School and a practicing physiatrist in the Department of Physical Medicine and Rehabilitation and on the medical staff at Dana-Farber Cancer Institute in Boston, Massachusetts. Dr. Silver also holds the title of Chief Editor of Books at Harvard Health Publications.

The American Cancer Society helps people facing cancer get through their treatment and recovery by providing a range of free and confidential programs and services for patients and caregivers, which help people learn about their disease and treatment options, receive everyday help for dealing with cancer challenges, and connect with others for emotional support.

5 Stars

More From Julie K. Silver, MD

Monday
06Oct2008

Our Genes Account For 15% of Cancers

David Servan-Schreiber, MD, PhD, is a clinical professor of psychiatry at the University of Pittsburgh School of Medicine and cofounder of the Center for Integrative Medicine. He lives in Pittsburgh, Pennsylvania, and Paris, France. He has been a cancer survivor for 16 years, and is the author of the International Best-Seller Anticancer: A New Way of Life (Viking September 2008).  Dr. Servan-Schreiber appeared on the Stand Up To Cancer event September 5, 2008, shown across major television networks and raised over $100 million.

David Servan-Schreiber--



Genes account for at most 15% of cancers. What matters most in prevention or getting the most of treatments is not our genetic makeup but the biology we create within our body to support our natural defenses against tumor growth.

The Genetic Fallacy
Most of us live with the false belief that cancer is a genetic Russian roulette. As one in three of us will die of cancer, the odds are indeed as bad -- worse actually -- than those of that dreadful game. But it is NOT genetic. A large Scandinavian study of identical twins (who share exactly the same genes) found that in the majority of cases they did not share the risk for cancer. In fact, the authors concluded, in the New England Journal of Medicine, that "inherited genetic factors make a minor contribution to susceptibility to most types of [cancers]. This finding indicates that the environment has the principal role in causing common cancers."

A New Approach to Cancer: Changing the Terrain
When it comes to treating cancer, there is no alternative to conventional treatments: surgery, chemotherapy, radiotherapy, immunotherapy or, soon, molecular genetics.

However, these treatments target the tumor much like an army wages war: focusing all of its efforts on destroying the cancerous cells. Yet, it's as important to change the environment that supports the growth new cancer cells as it is to continue to pound them with targeted attacks.

We all need to learn to change the "terrain" -- our biology -- to make it as inhospitable as possible to cancer growth.  As much for prevention as to increase the benefits of treatments.

The new model of cancer that has emerged from the last 10 years of research moves us away from genetics and squarely into the life-style factors that we can control.

Indeed, another New England Journal of Medicine study showed that people who were adopted at birth have the cancer risk of their adoptive parents rather than that of the parents who gave them their genes. At most, genetic factors contribute 15% to our cancer risk. What matters for 85% of cancers is what we do -- or do not do enough of -- with our life.

Since we all carry cancer cells in us, what determines whether we do develop cancer is to a large extent the balance between factors that promote cancer, and factors that help resist cancer.

Common promoters of cancer are:
  • Cigarette smoke and more than two alcoholic beverages per day
  • Refined sugar and white flour
  • Omega-6 fatty acids and trans-fats (corn, soybean, sunflower and safflower oils, hydrogenated and partially hydrogenated vegetable oils)
  • A variety of chemical agents present in some foods and household products (parabens, phthalates, PVCs, pesticides and herbicides)
  • Complete lack of physical activity
  • Responses to stress that lead to feelings of helplessness and persistent despair rather than a sense that one can help oneself or count on the support of others
Factors that slow down the growth of cancer are:
  • Several phytochemicals contained in some fruits and some vegetables, some herbs and spices.
  • Omega-3 fatty acids (fatty fish, canola and flaxseed oil, flaxseeds, walnuts, some green vegetables)
  • Physical activity (at least 30 minutes of walking six times a week)
  • The ability to manage stress so as to avoid helplessness (emotional management through meditation or yoga or good psychotherapy) or benefiting from the support of intimate relationships, or both.
Knowing that genetics are only a minor contribution to cancer helps us realize how much is in our power to help our body be a stronger partner in nourishing life and resisting cancer.

©2008 David Servan-Schreiber, MD, PhD

Why We Won't All Get Cancer

Moving Beyond Cancer Survival Statistics

Exercise Protects Against Cancer